After 16 years abroad, I moved back to my native Sweden. My husband is Austrian and we met in the US where I lived from 1996-2006, and then we moved to Alp-land aka Austria where we lived til 2013. I am still trying to get over that culture shock.
We have two kids. Vincent, our first born was born on May 12, 2006 with an extra chromosome aka Down syndrome (Translocation 21;21). Edgar was born October 10, 2009, but only 46 chromosomes there.
I admit to thinking it was the end of our world when we got the results of the blood test showing our son had DS, 5 days after Vince was born. I was so wrong! Though everything is not easy, life is a lot of fun! That extra chromosome really did not change much.
I started running again in 2011 and completed my first half marathon in October 2011. In 2012 I completed two half marathons and a handful of other races. Running is now a big part of my life and I run at least five days a week. Both for fun and for peace of mind. I am starting to think a full marathon would be fun. Maybe in 2014...
This blog is about living life Upside Down. Enjoy.
Thanks for the feedback on the nose issue (post below). I just know I read/heard some time some reason why it was not good for kids with DS to have the adenoids removed. Anyone remembering something like that?
Filed under: Get It Down 31 for 21, Health Care |
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Prince Vince Meets the World 
Hey Christina…I know for Kallie she couldn’t have them totally removed cause she has submucous cleft palate and removing them would cause her palate to shift and affect her speech. Hope that helps!
I have no answers for you but i wanted to let you know you have been nominated for a award!!
Being a healthcare provider- I have never heard of a physician taking only the adenoids (A) and leaving the tonsils (T)-although maybe somewhere someone might be doing it. Generally-if they are going to take a child to surgery and remove one-they will remove the other; in the event that the anoids don’t solve the problem-then they tend to blame the tonsils. They use to perform the T&A all the time-but it is not done as frequently since they have a better understanding as to their immune system function. In any event- good luck and hope Vince feels better and the new doctor treats you better.
Sean had both removed this Spring and it has helped him tremendously! It is extremely common for kids with Ds to get them removed.