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Edgar sat in his seat eating blueberries on Saturday. I gave him two at a time. He got very quiet and I turned around to look at him from where I was cooking dinner. He was sitting in his chair, bringing his two hands together signing MORE. Soo cool!

Help Needed

Edgar, you know that kid who keeps me up at night, like a lot? Yeah, him. He now all of a sudden refuses to take the bottle. He has been getting some formula at night and pumped milk when the baby sitter has had him/when B puts him to bed. As of all of a sudden, no more bottles. He will have NONE of that. Any tips on this one?
HE was perfectly fine with both formula AND the bottle before this weekend. Sigh.

Should Have Known

Edgar is nowadays sporting no less than two almost teeth. They are already through, but not very big so far. I guess that along with his rash (that seems to both be getting better and worse) is what makes him uncomfortable at night. It is 6,30 pm and I am thinking of going to bed. I will stay up till after 7 – I mean after all it is Saturday.

FOOOOOOOOOD!

Edgar will be five moths tomorrow, and to celebrate he got some real (baby) food. Parsnip is what was offered.

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Not convinced at the first try.

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What IS that thing?

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In the end he ate quite a lot!

We also made a quick run to the pediatric today, Edgar and I. His skin is REALLY dry and he has developed a rash. We got a creme, some anti-itch bath oil and some drops to stop him from itching at night. So hopefully he will sleep a little (or a lot will be fine too) better now.

Day Care Hell (loooooong)

I have been thinking about writing this for the last 5 months or so, but it is rather depressing so I just have not.
But. That was until I meat the day care b-i-t-c-h from hell aka Eggenberg today.
To summarize it: Vince day care now is WONDERFUL. We love it, they love him and care for him beyond any dreams we could ever have had. But he can only stay there till he is 3. After 3 you start Kindergarten in Austria.
We have tried to get him to stay an extra year, because of his DS, and the day care wants him too. But they get money from the Bundesland (kind of like a state) we live in, and the Bundesland says NO, arguing if he is so ‘handicapped’ we should apply for a special needs day care. Fine in theory, but not in practice. Vince needs the carrot of other kids running ahead and showing him what is possible, otherwise my kid has the talent of becoming very lazy, hence not developing hardly at all.

Vince is developing very well. And yes, as someone suggest recently I am aware of my kid’s diagnose, and no I am not trying to deny it either. BUT he is only as disabled as one makes him.
I also truly and fully belive Vince is developing so well because we challange him. We do make him have to try it on his own before we just give it to him. We only have one kid, and we are trying our best, and so far we are happy with his development. Of course we could always do more, I think most parents feel that way though.

This week is Kindergarten registration for fall 2009. Only this week.
So far we have been to 6 places. 1 we left with out registering in. The second was great, but they only have 2 free spaces, we will know if we get one in April/May.

Today we went to 3 others. The two first were OK.

Oh yeah, I forgot to say. In Vince group now there are 11 kids. Vince is the only one with any type of diagnose. He does not have an extra person for him. He is just like the other kids.
In Kindergarten there are 25 kids to 2 adults. That is so not optimal for us, Vince would disappear in a corner and sit there all day. So of course our goal is to find a smaller place for him. Not so easy though.

Most often the kids with a diagnose are lumped into one group, that is then made smaller. Maybe 4-5 kids with something, and then 10-12 kids that are just ‘normal’. There is also 3-4 adults. Usually they also have things like speech, physical therapy, ergo therapy IN day care. Opposed to what we do now, drive to three different appointments a week and puzzling with the schedules.

All of those groups in the whole city of Graz are half day groups. That means you have to pick up your child latest 1 pm. We are looking for a whole day day care. You know I have a store? Bookie goes to Korea a lot? etc…

There is also ONE day care in Graz (Austria’s second largest city, 250,000 people) that is a special needs day care with all day day care. This one is located approx 45 minutes one way by car from us. Pretty much as far away as you can get.

As I said, the two first day cares today were very nice and informative and explained how it works legal wise etc. They would put down on their list to try to get approved from the Bundesland (state) to have the smaller group be an all day group. The second lady pretty much guaranteed us a place in her group in one year (hoping Vince can stay one more year where he is) as then she will get the resources she needs for this.

Then we went to hell in Eggenberg (part of Graz). The lady there, a DAY CARE BOSS, told us immediately that she would have no space for a child like Vince. He needs the help they offer at the special needs day care. There they have the extra resources like a PSYCHIATRIST and more experienced personnel.

I flipped.

I said we are not looking for that, we are looking for an integration group where our son can LEARN from other children. (Don’t get me wrong, the special needs place is great I am sure, but there are other kids than Vince than needs a place there more than we do).

She then looked at me with the pity look, saying something like I misunderstood the whole thing how she meant it. She just meant that there the personnel could take care of kids like Vince.

I was so mad. SO MAD. I just told her that I knew what is best for Vince and we have also been recommended by the ‘experts’ that know Vince since he was 6 weeks old that that is NOT the right place for him.

She still thought we should go and take a look at it, as she again mentioned they do have psychiatrists there.

I just took Vince and left. He was happy to leave anyways. I was SO MAD I just cried bitter, stupid people, what type of woman is she, and how the hell can she be a leader at a day care-type of tears.

Thankfully B is NOT in Korea and was there too. He was also really upset. This is so not the last story about day care, but enough for today. Sigh. Some people just plainly SUCK.

I know my kid has an extra chromosome. I know what it does and how it affects him. I know what he can do now, but not all he will be able to do in the future. I am also of the firm believe my kid is just as disabled as we or society makes him. If you want him to learn nothing, he probably won’t, but if you challenge him and teach him, only Vince knows what the future may hold. Without challenging him he will be a burden to society and taxpayers. He will be in need of constant services and tax payer’s special needs money. But I am sorry, we are not heading down the do-nothing-path. We are walking the do-it-our-way-path, and Vince is going to come out an even bigger champ in the end. I swear, I just know it!

New Dimensions

Vince woke up around 6ish this morning. I heard Bookie get up and get in the shower, I stayed in bed and listened to Vince playing in his room. After a few minutes I got up and went into his room. Vince was sitting on the floor playing with his toys. I wondered why the heck Bookie and taken him out of bed and then gone to take a shower? When Bookie got out of the shower I asked him, and he told me he had not put Vince on the floor. Hmm. So our kid now knows how to climb out of his crib. I did hear a somewhat loud sound before I went into his room, but I figured that he had reached the stuff in his window and thrown it on the floor (he does that every morning). I guess that sound was my kid falling/climbing out of bed. There were no bumps or bruises on him though, so I guess he perfected the first attempt. So now we are going bed hunting. For a big boy bed. Any suggestions?

The Bad & the Good

I guess I spoke too soon about 2008… Or there are good things and there are bad things. The bad thing is the pneumonia that apparently decided to come and live in my right lung. Yeps. So since Saturday I am on antibiotics – did not see that one coming. But in an attempt to keep Emma (who just graduated last week fr med school) busy, I have added yet a diagnosis for her to research. She did decline the offer to come and work full time for this sick family, even though I think it could be an interesting job – however, most likely not as well paid as other jobs she will be getting.

On the other hand there are the good news: Vince is walking!!!!!!!! Hurrah! I am SO proud of him! yesterday he walked 8-10 steps at a time many times. He got up in the middle of the room and walked over to the couch. Then he got up and walked to the bowl of chips (good source of nutritions if you have pneumonia) and he did it a bunch of times in a row. Of course I did not get the best of it on camera, but he did it! His preferred way of moving about is still crawling, but he adds more and more steps everyday!