And if you have ANY tip on how we might get him to keep them on – please feel free to leave a comment 😉
Filed under: Down Syndrome, Just Life |
After 16 years abroad, I moved back to my native Sweden. My husband is Austrian and we met in the US where I lived from 1996-2006, and then we moved to Alp-land aka Austria where we lived til 2013. I am still trying to get over that culture shock.
We have two kids. Vincent, our first born was born on May 12, 2006 with an extra chromosome aka Down syndrome (Translocation 21;21). Edgar was born October 10, 2009, but only 46 chromosomes there.
I admit to thinking it was the end of our world when we got the results of the blood test showing our son had DS, 5 days after Vince was born. I was so wrong! Though everything is not easy, life is a lot of fun! That extra chromosome really did not change much.
I started running again in 2011 and completed my first half marathon in October 2011. In 2012 I completed two half marathons and a handful of other races. Running is now a big part of my life and I run at least five days a week. Both for fun and for peace of mind. I am starting to think a full marathon would be fun. Maybe in 2014...
This blog is about living life Upside Down. Enjoy.
And if you have ANY tip on how we might get him to keep them on – please feel free to leave a comment 😉
Filed under: Down Syndrome, Just Life |
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It’s not enough to be cute? He has to look distinguished too??
He is going to look distinguished, that’s true. (Pardon my husband..he’s jealous that Vince is such a superstar!! :o)
We’ve been blessed that Braska leaves hers on very well, and I think it’s all about the fact that she can see so much better with them. I can say this, we’ve seen alot of people try to use a strap around the back of the head for their kids, to help keep them on, and it never works. It seems to further annoy them. It generally helps to do busy things the first few times he wears them… watching Signing Time!, reading, keeping hands busy (or even held a little) in order to keep them from grabbing and giving time to adjust to what they’re seeing. Good luck!!! Can’t wait to see him with his specs!
I hope he keeps them on all on his own! It does take some adjustment time! Miss E likes to hide hers! Good luck! He will be even more stunning than he is now!
The only thing I can suggest is super glue. 😉
its been a struggle. mayson has had glasses since she was 10 months old…. she goes in spurts. I think what you have to do is just be consistant with keeping them on!!!! he will look adorable in them!!
we get our glasses at specs4us.com. they are made for kids with DS and fit great!!!
Do you know about specs4us?
Rustin has worn glasses sinces he was about a year old and we have had both kinds and have had the opposite conclusion. The ones with the strap work best for him. He hated the wire frame and would never keep them on and does much better w/the strap and they help from keeping them from sliding down his nose. Good Luck! I think every kiddo is different!
We had a hard time shopping for kids frames.
We have been happy with Como Baby frames which have a soft knit strap. Our child(T21) is almost 3 and now the larger frame size is needed for frontal frame width, though the lenses do seem large. We also ordered extra straps from solobambini.com.
Solobambini.com carries these. They also have their own line of plastic frames which we did try and their frame did not have firm enough plastic to prevent to frame from bending accross the front/face when worn.
Mostly she keeps the frames on, we think the strap helps, and we have not needed to spend time getting frames adjusted with an active kid.
We have heard tell of nose piece bits being bitten off of other frames and are glad we have not been down that road
Best wishes.