It Is the Small Things That Count

Down Syndrome exists within all cultures, races and economic levels. It is the most common chromosomal abnormality in the world. In Sweden, approximately 100 children with DS are born a year. I assume it is approximately the same in Austria, as the population is similar. There are over 350,000 people in the US with Down Syndrome.

On Friday we had our first Dr’s appointment since we left the hospital. It was a regular hip ultrasound that is made on all babies within the first weeks. The Dr’s office is approx 10 min walk-way away, so located conveniently we loaded the Emmaljunga and off we went. Mormor and Morfar we left in the sunshine in the garden.
Since we left the hospital, Vincent has gained 130g, and he was 100 g over his birth weight! It is common for DS babies to not be good eaters, and also to gain weight slowly, but Vincent was following the curve of a “non-DS” baby (I refuse to say “normal” – what is normal anyways??? Certainly not this family). The Dr checked the hips (as Vincent was crying/screaming the loudest he ever screamed:-)), the kidneys, lungs and the heart beat. All to her satisfaction. So he is as healthy as he can be! The only thing is that his torso is a bit narrow in comparison to his belly, which can cause him to have lung infections/serious coughs more often. However, this may or may not be related to DS.  We were also told that since he has DS, he is in a higher infection risk group that other babies/children. We will therefore need to give him a few more vaccination then non-DS kids get. DS children tend to get sick more often, longer and more severely than non-DS kids. Therefore, we also need to be careful with other children and adults around us to try to prevent him from getting sick. It is also important for us to take Vincent to the Dr as soon as we suspect him of having a cold or being sick. DS children are treated with antibiotics sooner so that they will not get severely sick or have to go to the hospital.

As we walked home, I felt like I was skipping on clouds. It was such a relief to hear that everything was OK, and that he was following the developmental curve in an excellent way. The last few weeks have been filled with information and tests with non-optimal outcomes, and to hear that our child was doing great, and come back for the next regular control, was like having something lifted from my shoulders. To me he has always been perfect, but to have someone tell me that there is nothing to worry about from a medical standpoint was just wonderful news. That night I fell a sleep with an even bigger smile on my face.

vincent.jpg

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